I am Ashlee
and this is my cause
UNLOCKING AUTOIMMUNITY INC. IS A NON PROFIT MOVEMENT DIRECTLY FUNDING STANFORD MEDICINE, JOHNS HOPKINS MEDICINE AUTOIMMUNE DISEASE RESEARCH CENTER, UNIVERSITY OF FLORIDA- GAINESVILLE AND THE LAMB FOUNDATION FOR DYSAUTONOMIA.
The purpose of every aspect of this movement is to raise awareness for the estimated fifty million Americans, and millions more worldwide suffering from an autoimmune disease. Most importantly the purpose is to come out of the major deficit in funding for those working extremely hard to find better treatments and cures for these diseases that cause us to suffer daily. To discover solution.
It was recently stated to me that health is a state of mind. I firmly believe that a positive mind and emotional well-being can and does have a profound impact on the overall health of the human body as well as it’s ability to heal itself. I’m unsure we as humans have been able to tap into that completely as many diseases still prove to take many lives. These diseases continue to take lives from those with the most positive of attitudes. I am not discounting those that have healed and attributed it to their mindset. At this moment in time however, many are practicing positivity and emotional well-being however continue to suffer. We are desperately in need of better treatments and cures for these diseases. Personally, it has proven difficult to maintain one hundred percent positivity when everyday I experience a symptom of my disease that brings me some kind of pain and discomfort. There is always a reminder that it is there, waging a war within my body.
It is estimated that there are more than 80 autoimmune diseases. It is well-known that autoimmune diseases continue to have unidentified causes. Please note under the “AI diseases” tab on the menu bar within each disease listed that all have an unknown cause. These cruel diseases cause the human immune system to turn on itself. The immune system begins to see its own self as the enemy. Just as the immune system attacks a foreign pathogen that has entered our bodies to keep us healthy and well, the immune system gets confused and can attack any tissue or organ within the body. Not one cell of any tissue or organ is safe from these diseases. This causes widespread inflammation and an overwhelming amount of complications from disabling arthritis to chronic pain, rashes, strokes, blood clots, aneurysms, kidney failure, heart attacks, deep vein thrombosis, pulmonary embolisms, heart disease, respiratory failure, liver failure, neuropathy and even death. With the amount of people at risk for these serious complications due to these diseases there is a more than urgent need to recognize them, know them, and discover their origin, and ultimately cure them. Currently, treatment for most of these diseases consists of immunosuppressive drugs and treatments for symptom relief such as narcotic, highly addictive, medication. Personally, I feel this is completely negligent as these treatments leave the individual susceptible to serious and life-threatening infections and many types of cancers, organ damage, premature heart disease as well as addiction, which is also lethal. Many of the more than 80 diseases have no specific approved drug for them. This is a serious matter and highly alarming. I have a family member who passed away from Lupus complications in 1977. It is 2017 and these diseases still do not have specific medications, safe medications, known causes or cures.
Autoimmune diseases are said to be “invisible diseases” as many symptoms one experiences are not visible to the eye. Instead they are causing destruction on the inside. Much like an iceberg. There is so much more beneath the surface than we/you can see. This leaves people being dismissed, feeling alone, confused, minimized, highly frustrated, lost and desperate. Many autoimmune diseases have no definitive tests to diagnose them and many people literally wait years in pain and experiencing terrifying symptoms to get diagnosed. This is unacceptable. No one living-being should ever have to suffer this way. Please see the statistics on the amount of years it has taken some to get diagnosed under the “statistics” tab in the menu.
Through my own research I have discovered there are many, many research teams desperately attempting and working countless hours to put the mystery of autoimmunity to an end. Many of them lack funding due to a lack of awareness and known seriousness of these diseases and what people are experiencing. Our goal is to be heard, to be seen, to be taken seriously and to raise as much money as we possibly can to DIRECTLY fund those trying their absolute hardest to discover the causes, treatments and cures.
Please feel free to read the testimonials that those struggling have poured their hearts and souls into and have become vulnerable to share with you just what they have experienced and continue to experience. Your help in any way is more than appreciated. We are forever grateful.
“……and that visibility which makes us most vulnerable is that which also is the source of our greatest strength.”
– Audre Lorde